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Is something burning?! Yep…that’s me (and maybe you too).

Stress is no stranger to individuals and families affected by disabilities. As a parent of a child with a rare genetic disorder, the stress is chronic. Sometimes I get asked, “How do you do it?!” Depending on the day, the answer ranges from “I don’t have a choice” to “not very well”.  Due to the additional challenges that 2020 has …